November 27th -
Today was a first for us involving Declan’s g-tube. During one of Declan’s feeds Ryan saw that his button pretty much came apart (it split in two!). We debated going up to CCMC but knew it wasn’t worth the trip. We have watched the nurses change out his g-tube button at least 6 times before and we have the back-up button at home for emergency situations like this so we decided to do it ourselves this time (with no help from our friend Nurse Marie) I think I held my breath the entire two minutes it took for me to change it; but all went smooth and it wasn’t so bad after all. I was going to take a picture of “the procedure” but figured there may be some people that would get grossed out by the sight of it 😆
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