Snow Day

December 3rd -

Today we enjoyed the first snow day of the season! Declan tried sledding with his dad for the first time; he seemed to not be a fan of the cold but seemed fine with the sledding itself. Today we also heard from Declan’s neurologist that he is requesting another 24-hour EEG as well as a MRI. Children diagnosed with Dandy Walker malformation are at increased risk for seizures and hydrocephalus. Although Declan hasn’t exhibited seizures, the last EEG showed abnormal brain wave activity. Also, he is trying to figure out the cause of Declan’s central apnea; pretty much his pulmonologist is trying to address the obstructive apnea and she has asked his neurologist to try and figure out the source of his central apnea. Declan hasn’t had a MRI since he was a few months old. He will have to be sedated for the procedure which has it’s risks as well but hopefully everything comes back uneventful!!